yesterday, Jino and i received one of the BEST, early Christmas presents ever. over 6 months ago i sent Reagan's MRI up to Carter Center-where they specialize in research about Holoprosencephaly. since they are the expert's on HPE i wanted a 2nd opinion on her MRI scan. finally got a call yesterday regarding the results. it's GREAT news! REAGAN does NOT have HOLOPROSENCEPHALY!!!!!!!!!!!!!!!!!!!! although it's great news, we now don't know what she does have. she does have brain abnormalities but it is NOT HPE. thus begins our new journey......
here's the cut and paste from Dr. Hahn who read Reagan's MRI scan:
DX: Absent Septum Pellucidum with ventriculomegaly and retrocerebellar cyst. Not holoprosencephaly.
here's what the nurse reiterated to me cause i kept emailing her to make sure:
here's the cut and paste from Dr. Hahn who read Reagan's MRI scan:
DX: Absent Septum Pellucidum with ventriculomegaly and retrocerebellar cyst. Not holoprosencephaly.
here's what the nurse reiterated to me cause i kept emailing her to make sure:
DX: Absent Septum Pellucidum with ventriculomegaly and retrocerebellar cyst. Not holoprosencephaly.
Your child does NOT need another scan. We are positive it is NOT HPE.
There are some abnormal brain parts (as listed above). Just visit with your neurologist about these findings and what they mean for your child. None of these abnormal parts can be fixed. None of these abnormal parts are life threatening or need further workup.
Your neurologist may contact Dr. Hahn with any questions
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